Diagnosing ‘invisible condition’ of dysautonomia offers opportunity for many to thrive again

A variety of health concerns arise as we age. One often overlooked health condition is dysautonomia — an umbrella term used to describe multiple conditions affecting the autonomic nervous system, which controls all involuntary bodily functions such as heart rate, blood pressure and breathing. Dysautonomia, affecting more than 70 million people worldwide, is not rare but remains relatively unknown.

Dysautonomia symptoms can be widespread and vary in intensity from person to person. Symptoms can be present, disappear and then return, and patients may appear healthy. “This leads to [dysautonomia] being considered an ‘invisible condition,’” according to the Dysautonomia Support Network.

Some common symptoms are:

• Orthostatic intolerance. Upon standing, individuals may experience dizziness or fainting due to fluctuating blood pressure and heart rate.
• Heart rate irregularities. Rapid or slow heart rate can lead to palpitations and chest pain.
• Thermoregulation issues. The body may lose its ability to regulate temperature, causing excessive sweating or an inability to sweat.
• Fatigue. Intense fatigue is common, often accompanied by brain fog, forgetfulness and an inability to focus.

To diagnose dysautonomia, a health care provider uses a tilt table test. The patient, connected to blood pressure, oxygen and heart monitors, lies on a table that lifts and lowers at different angles. As the table tilts, the patient’s ANS functions are measured. Other diagnostics include sweat tests, heart and breathing tests and bloodwork.

Managing symptoms

While dysautonomia is incurable, its symptoms can be managed. Treatment must be individualized and involves a combination of lifestyle modifications and medications, including:

• Increasing fluid and salt intake to maintain blood pressure and hydration.
• Wearing compression garments.
• Exercise regimens and physical therapy to improve muscle tone, posture and overall well-being.
• Adopting a balanced diet and eating smaller, more frequent meals.
• Counseling and mental health support.
• Beta-blockers, vasoconstrictors and anti-nausea drugs, as needed.

Dysautonomia may be a hidden condition, but its impact is profound. If you or someone you know is experiencing these symptoms, please seek medical advice and support.

Helpful resources

Dysautonomia Support Network
dysautonomiasupport.org

Dysautonomia International
dysautonomiainternational.org

Dysautonomia Information Network
     dinet.org

Dysautonomia–MVP Center in Birmingham
    mvpctr.com